Patients Boycott UK ConDem Government Medical Database

A service set up to enable millions of patients to email their GPs and access their Summary Care Records online has proved to be unwanted by the vast majority of potential users, according to a major new study. Academics from London found that instead of the 5-10% of the population that Connecting for Health predicted would sign up to the HealthSpace service, developed as part of the National Programme for IT, only 0.13% of those invited to take part got as far as activating the full functionality of their personal health record. Only 2,913 of 2.24 million patients invited to open an advanced HealthSpace account actually did so, and the research team did not find a single person who had accessed their Summary Care Record. Professor Trisha Greenhalgh, from Barts and the London School of Medicine and Dentistry, who led the research covering uptake of HealthSpace from its release in 2007 until mid-2010, concludes in the report: Unless personal electronic health records align closely with peoples attitudes, self-management practices, identified information needs and the wider care package, the risk that they will be abandoned or not adopted at all is substantial.
Ian Quinn, PULSE
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