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Big decision - Private consultation.

Friday, December 7, 2012 20:51

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My mum and I have come to make a big (and expensive) decision. I am going to have a private consultation with a new neurologist.

With everything that has been going on and getting absolutely nowhere with being able to see my current neurologist on the NHS, something inside finally snapped and after a few phone calls between my mum and I the decision was made. After receiving some emails from my mum following our discussion she went on to research various neurologists and emailed me with some choices. Yesterday morning I asked a few people their opinions on a couple of them and any experiences they had and I received a very positive reply to one particular neurologist. Within minutes I made a phone call to the private hospital and booked an appointment. I’ve never had any dealings with the private medical sector and was expecting them to offer me an appointment early next year… I’m booked in for a consultation on Tuesday evening. THIS Tuesday!!

It would be nice to maybe get a bit closer to some answers. My results from my video telemetry aren’t ready yet but I can’t wait any longer. If I put the telemetry to one side, maybe this doctor might be able to help me find out what is causing my constant headache or the worrying change in my field of vision that the optician and hospital picked up on a few different occasions yet nothing had been done about either. Each time something like this has thrown a complication into the mix all I’ve heard is “you’ll need to see your neurologist about that” and placed on more medication with increase after increase and hospital stay after hospital stay… It’s scary to be left on the side lines when something obviously isn’t quite right. I might be able to come off some of the painkillers I’m on, or change something in order to kick start a reaction, or maybe nothing will change. Who knows.

Tomorrow I will be spending the day gathering all my paperwork ready, be it old clinic letters, videos, witness accounts, or anything else I can find and think to talk about. My GP has prepared a referral letter and produced copies of all my recent test results ready for me to pick up on Monday to take with me. My mum is travelling down to meet me during the afternoon and then we will be going to the appointment together.

It’s a strange feeling that maybe, just maybe, I might be about to progress further with my condition be it positively or negatively at least I can learn to deal with it rather than sitting and waiting constantly. Currently I feel like my life is on hold. I’m not really sure what to expect to be honest… I’m trying not to allow myself to get too hopeful though, but even if it’s just another person looking through my case and offering up some suggestions and opinions then it will be worth it.

2012-12-07 18:36:03

Source: http://jade-epilepsymynewlife.blogspot.com/2012/12/big-decision-private-consultation.html

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