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The Cure is You: Dealing with Chronic Illness Part 6

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Alternative Remedies

As I peruse some of the information online about alternative and herbal remedies for epilepsy,  I have to say I’m confused and sometimes alarmed at where these sites are getting their herbal information and how biased many of the articles (those stemming from allopathic traditions) are. One article that does have some good information states:

However, more research, screening for harmful agents, and human-based studies are needed. Ideally, scientists would isolate the active antiepileptic ingredients in these plants while removing any harmful compounds.

Anyone who has ever studied herbalism knows that this is NOT what herbalism is about. Herbalism, when done correctly, isn’t about isolating compounds or distilling the “active” agents.  Herbalism goes beyond popping a pill, which itself is a compound or distilled

“active” agent.  This one comment, seemingly innocuous, makes the reader think herbalism would be ok if it was approached in the same way as traditional, Western medicine.  The whole point of herbalism, for me, is that it is a different approach– and I don’t mean different just to be contrary.  Herbalism is an alternative that encompasses the whole thing, the whole body, the whole plant.  Epilepsy is a neurological disease.  However, there are so many other factors that are at play that the one-size-fits-all approach just doesn’t work for everyone.  And yet, when herbalism is mentioned– alongside other alternative therapies– there is always some chagrin, some distaste, some reminder that herbalism is not safe because it hasn’t been analyzed in a lab.  Well, I’ve been on allopathic medicines that were eventually deemed unsafe, even after they went through testing in a lab.  I’m sure you have too. And we all know how Big Pharma can influence certain drugs being released on the market without complete testing or with poor test results.  Western Medicine is big business and allopathic doctors are hooked into that, and they want you to be as well.

In his “Divergent Streams of Herbalism: Alternative Healing and the Mainstream,” herbalist Jesse Wolf Hardin addresses how mainstream medicine, and those supporting the allopathic or conventional approach to medicine, illness, and treatment, address or disregard herbal approaches to wellness:

A number of mainstream scientists speak as if alternative medicine (including herbalism) meant “ineffective or unproven” or “without any scientific basis or verifiable results.” Alternative practices “do have scientific value,” quipped one of the commentators on Randi.org, but only “to psychologists studying delusional behavior!”  A standing joke among MDs, is that “alternative medicine” means an “alternative to medicine.”  This includes plant medicine in the eyes of the great majority of them, considered of little more use than colloidal silver and magnet therapy.  One online rant goes as follows: “Herbal Medicine?  Give me a break!  If herbs pass the test, they’re just medicine.  And if they don’t, they’re just soup and potpourri.”  This prevailing attitude on doctor’s forums and in many scientific circles….[fails to mention] that most research is conducted by an industry with a vested interest in profitable synthetics, is usually done on isolated compounds rather than whole plants, and fails to take into account individual constitutional factors.

Because Western medicine is centered on the one-size-fits-all approach which isolates the “good stuff” and synthesizes the “medicine,” it is also centered on profit-mindedness.  Even the rise of modern medicine came out of the European guild tradition, which required membership fees and so forth.  Simply put, you cannot make money off herbs.  There are no patents that can be placed on wild things– although many in Big Pharma would like to change that. (See Nestle’s own admission about what they want to patent and even a tenth of the stuff out there about Monsanto or Syngenta)
Also, allopathic medicine– the medicine that seeks to suppress symptoms instead of treat the whole disease or whole body– and the approach of Western medical practitioners (and researchers) doesn’t recognize, doesn’t understand, and doesn’t want to entertain the idea that with an herb– all of it is necessary. You cannot isolate out a single compound and expect results.  Many of the so-called tests, even ones that show positive results regarding herbs used in neurological conditions, often isolate out chemical compounds or “active agents” to then inject into lab animals. While those tests give hope, to some dependent and focused only on the allopathic approach– that’s now how you’d use the herb at home.  

Please don’t misunderstand me when I say the whole herb. I don’t mean that you need to use all the plant, but you do need to use all of the piece of the plant that the herbalist instructs you to use.  You’d be using the whole leaf, the whole flower, the whole root, and in some cases, the entire plant.  When used in this fashion, herbalism is reliable and helpful.  As Hardin notes (again from the above article):
…herbal effects are indeed testable – in some convincing way or another – if:

  • Using whole plants, not constituents.
  • Paying close attention to dosage, when to use dry or fresh plant material, and means of preparation 
  • Looking for more than an isolated action or effect. 
  • Taking into account the constitutions and health histories of those in the study.  
  • Measuring health as more than the alleviation of symptoms.

The article I noted earlier, posted by the Canadian Epilepsy Alliance, suggests herbalism in a dismissive way, like those anecdotal doctors Hardin mentions.  Then several top anticonvulsant herbs– kava kava, scullcap, and marijuana– are included in a list of “HERBS THAT CAUSE SEIZURES.” Could some of the herbs on this list cause seizures? Potentially, depending on the individual, depending on the quality, depending on the strain of marijuana used.  While I cannot speak from experience, there has been a lot of buzz –both in the herbalist and scientific arenas– about a particular strain of marijuana called Charlotte’s Web which is linked specifically to a relief in epilepsy in children.  And the numbers of so-called “marijuana refugees” taking their family to Colorado specifically for their treatment of their child’s epilepsy is growing. Both kava kava and scullcap are known antiepileptics and anticonvulsants very familiar to herbalists.  


The reasons Western Medicine looks down on herbalism run deep. To encapsulate the why, I’d like to again turn to the wisdom of herbalist Jesse Wolf Hardin:


From the very beginnings of what it means to be human, the shape of herbalism and the shape of the mainstream of human society and culture were the same, and where people migrated or ideas evolved, the principles of natural healing and cabinet of plant medicine knowledge would go too.  When a culture swerved towards one direction or the other, its medicines swerved and undulated in unison, for it was not only the preferred way of healing, it was often the only effective means. This began to drastically change in the early Middle Ages, especially as “familiarity with healing herbs” became an indicium, an official indication of witchcraft according to the Catholic Inquisition of the so-called “civilized nations.”  In Spain, Germany, the Netherlands, and England especially, terrible tortures were used to extract confessions for a horrific number of accused witches, many of whom were accused for no more reason than a profane oath, a tendency towards disobedience, or “the gathering of fruits and plants for medicine.”  Many were apparently turned in by jealous or weary spouses anxious to be free of them, and many more were easily implicated by their role as midwives, herbalists and healers. …Plant Medicine has largely remained a semi-legal, semi-outlaw, alternative field ever since… and we probably need to get used to it: a different healing stream, committed to following its own evolving direction, aptly finding its own channel of ingress and expression, proudly assuming its own characteristic shape.
I found this on a great, informative site: http://www.hispanicherbs.com/index.html


Herbalism, being a traditional healing method, has been practiced for thousands of years. It was the first medicine. Herbalism has been the medicine for the poor, for the disenfranchised, for women, and for non-Western countries. Looking to another powerhouse in American Herbalism, Kiva Rose in her article “Herbalism on the Edge: Walking the Borderlands” gives an excellent perspective on the edge that herbalism rests on:



Some would have us think that herbalism remains the domain only of “primitive” peoples or, on the other hand, conventional medical professionals who have the accreditation considered necessary to treat clients. And so we walk another kind of edge, within the legal system and the regulations created by entities such as the FDA.
These edges are important, imperative even. This is a time of many people being both disempowered and disconnected from even the most basic healthcare, often from a lack of education and finances. As herbalists, we’re pushing at the borders of what’s considered normal, sensible, and sometimes even acceptable, within mainstream society. Regardless of how straight we look, speak or feel, the very act of teaching or treating with botanical medicine tends to immediately place us on the fringes of standard American culture.

Biases exist and because scientists can’t always replicate results with herbal treatments, the terms chicanery and quackery are used. Added to that are the brutal facts that herbalism does attract quacks and snake oil peddlers.

Rose encapsulates the difficulties with herbalism– difficulties for allopathic practitioners and researchers trying to quantify how herbs heal: 

Occasionally I have to remind myself that my work with clients isn’t as a doctor, dictator or a magician, but simply as a matchmaker between person and plants. It’s that simple, and that difficult.

This is the problem that conventional Western medicine and all the sites that list toward using conventional Western approaches to illness can’t seem to get around.  Working with herbs is exactly that, making a match between the person and the plant.  And, as we know in love, matchmaking takes time. It’s not a one and done approach.  Most people don’t want to take the time to fine-tune an herbal regimen or even the time to investigate possible herbal options.


As I’ve said, and will keep saying: herbs aren’t a one-size-fits-all approach. What may work for someone, may not work for someone else. Fine-tuning takes time.  But, while doing my own research on epilepsy and herbal approaches, and augmenting that research with research for this series specifically, I’ve come to see that most if not all the articles I’ve read that even suggest alternative approaches to managing epilepsy make suggestions with slight derision, slight condescension, or pronouncements of gloom and doom– that HERBS CAN CAUSE SEIZURES.  I hope to change that with this series of articles.
 
A great resource for epilepsy in terms of general information has a fair article on alternative treatments for epilepsy entitled, “Alternative Therapies.”  It was the first article that really gave me some hope that no, I didn’t need to take the meds the doctor prescribed. I mean its NYU Langone medical center; they must know what they’re talking about, right?  They have great stuff about alternative therapy that isn’t limited to herbs. This article lists Acupuncture, Chiropractic therapy, and self-control of seizures. Although, it might be less condescending, less derisive to call this last therapy Biofeedback.  By saying that seizures are somehow within your total control and you can just– as the article suggests–  “block a seizure from progressing” implies in some way that the seizures are created by and controlled by the conscious mind.  That bugs me.  I can’t just think a seizure away.  

What the folks at Langone are describing is Biofeedback, itself beset with claims of quackery.  The kind of biofeedback described here reminds me too much of this:

 
But, like herbalism, biofeedback has been used in one form or another for a very long time, hundreds if not thousands of  years.  Biofeedback is a new term describing the use of techniques to control autonomous functions of the body– heart rate, neurological responses, and so forth. Biofeedback has also been called “electronic Yoga” because the results are the same, relaxation and body control, but biofeedback uses electronic devices to achieve the result of careful, consistent yoga practice.  The original biofeedback, not this galvanic stuff, could include  breath-work, meditation, relaxation therapies, and yoga. Eastern Medicine has been using this kind of biofeedback for ages.  I suppose you can categorize what I outlined earlier regarding finding my triggers and cataloging my seizures as the groundwork to biofeedback. Biofeedback has had positive results for a whole host of conditions.  It is quicker than devoting the next 30-40 years to constant yoga practice to become a master yogi capable of controlling body systems– and biofeedback is available to those who have physical limitations that make yogic practice impossible.  
 

I’ve also noticed that some articles listing possible herbal treatments for epilepsy list herbs that are so outdated as to be laughable. With my knowledge of herbs, which is more than average, the list NYU Langone has for herbal treatments includes herbs that are toxic and others that were used to treat epilepsy 500 years ago (mistletoe and lily of the valley).  Another article, also from NYU Langone gives a little more information about alternative therapies and some to avoid  but still with the same caveats which pronounce alternative therapies not as trusted as allopathic medicine.
So, before throwing the baby out with the bath water, you must do your own research. The NYU article and the Canadian Epilepsy Alliance article both give some very sound advice. Both highlights something important about herbal treatments: what may work for someone may not work for someone else, or even may cause harm. Also, herbs for epilepsy may counteract antiepileptic drugs or negatively interact with those drugs.

Herbalism can be dangerous– if not used properly, if used without any education or research, or if used without respect for the plant as medicine.  Remember that plants were the first medicines and epilepsy is a condition that has been around for as long as human being have walked the earth.

Epilepsy is a dangerous condition; I don’t need to tell you that, but there are so many suffering because the traditional medications and the allopathic pharmaceutical approaches don’t work, or have their own baggage.  But, if you find the right blend of alternative treatments for you, there can be hope– if not for a cure, but for a relief of symptoms.  I’m not telling you to follow my lead, but as with my articles outlining my husband’s approach to his diabetes, the herbal way was the right way, for him.  And, of course when cure is mentioned not in conjunction with Western medical approaches, the mainstream mind goes immediately toward ideas of chicanery.  Hardin says, with conviction and I agree with him wholeheartedly:

Nearly everything alternative is painted in the mainstream as being either extreme, subversive, heretical, unseemly, fatuous, or foolish…. And anything other than conventional medicine is considered quackery, whether via deliberate fraud or self-delusion. 


I am certain many would find the regimen I have created for myself a panacea of self-delusion.  But, it works for me. The regimen I helped my husband create for his diabetes worked for him.  It’s all about finding the right regimen for you.




Source: http://www.green-and-growing.com/2015/02/the-cure-is-you-dealing-with-chronic_40.html



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