The Setback

On Tuesday evening, I took Caleb to football practice. We all went to dinner after and I developed a headache. I came home and went to sleep. Around 2 am, I woke with a severe migraine. I couldn’t lay down or sit without unbearable pain. So I paced for hours. Around 4 am I became nauseated and got sick several times. At 4:30, I woke my husband in a panic. I normally have large veins in my hands, but I couldn’t see them. I knew I was dehydrated. Ryan insisted I go to the hospital. I wasn’t sure how I could tolerate the pain long enough to ride to the hospital at that point.

I can remember Ryan was on the phone a lot, but I can’t really remember much of it. I know the doctor came in several times, but I can’t remember much of it either. They wanted to do a spinal tap and I could not go through that. I know they did another round of morphine. Aseptic meningitis is a side effect of IVIG treatments. I can’t remember getting home. All I can remember is waking up at 5:30 pm Wednesday night when my parents came to sit with me while Ryan took the kids to his parents.

Thursday I still had a bit of a headache, but it wasn’t awful. I haven’t had pain meds in over 24 hours so I feel like the worst part is over. I was able to watch Caleb play football again Thursday night and I came home and had energy to clean some. I haven’t been able to do that in months. Normally I am wiped out by 8:30 in the evenings. I clean in the mornings or at lunch, so it’s a relief to finally have the energy to do that.

I am hopefully optimistic. I’m almost afraid to get excited at this point, but I am supposed to see a difference on day three or four. I don’t really know how long it should take to see a full effect. I am terrified that it hasn’t worked and this is just some temporary placebo effect. I don’t know what the next step would be if it didn’t work.

That’s basically where I’m at. I have tons of things to write about, but I have to just get through this right now. Hang in here with me.