In a tiny hamlet in Colombia, six-year-old Didier has struggled with a huge burden – a rare condition called a Congenital Melanocytic Nevus. It’s a giant mole that grew so much it covered 40% of his body. It resembled a shell, and Didier was nicknamed Turtle Boy.
There was a chance it could turn malignant. And Didier’s mother Luz struggled with an additional burden – guilt. In this superstitious society, there was a belief that Didier’s growth was a result of being conceived during an eclipse, which meant Luz and her family had to live apart from the rest of the village.
Luz longed to be free to have her son baptised, to take him to school and see him grow up like any other boy. But there was no way she could raise the money for an operation, until a local news crew broadcast a story on Didier.
The procedure would be complicated and dangerous, and even if it was successful the recovery process would involve a complicated series of skin grafts.
This extraordinary film traces Didier’s story: a story of cutting-edge medicine, a mother’s love, and a brave six-year-old’s fight to be released from his burden. Little Didier Montalvo suffered from Congenital Melanocytic Nevus, which meant a mole grew so large it almost entirely covered his back.
The six-year-old, from Colombia, was teased and banned from going to school because of the growth.
Locals in his village feared he had been cursed by evil forces because he was conceived during an eclipse.
And mum Luz could not afford to pay for surgery to help rid her son of the birthmark blighting his life.
But when plastic surgeon Neil Bulstrode, from Great Ormond Street Hospital, in London, heard about the boy’s plight, he and his team flew to capital Bogotá to operate on him. Mr Bulstrode is an expert in treating patients like Didier, who suffer from the rare condition. The cause is not known but experts think there is a change in the development of skin cells in the embryo triggered by a gene mutation.
Mr Bulstrode, who carries out about 40 CMN removals a year on patients at Great Ormond Street, said that working with the team in Bogotá had been an amazing experience
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