Help Mom Caregiving for 9YO Daughter with Extremely Debilitating Cerebral Palsy ( Who is Terminal) Win Cruise for Family - Please Vote

This is a repost from Maggie’s Notebook. 

Alexa Savage is 8 years old. She has had cerebral palsy since birth. She has never been able to walk or speak without assistance, but she can use a computer, and goes to school in 2d grade. She speaks thru a specialized talking computer. She likes to read, but has trouble with math. She likes to swim, but has to watch others run and play. Most days she plays with her video collection on her free time. Her parents do all they can with their time and resources to get Alexa the therapy and support she needs.

Alexa has recently been diagnosed with “mitochondrial degeneration”. Basically, the “engines” inside her cells that process nutrients are breaking down. As new cells grow, there are fewer and fewer working mitochondria. Eventually this will mean that she can’t sustain life and will go into seizures and her heart will stop. We don’t know how much longer Alexa may last. She is already 3 years past the doctors’ best-case estimates.

Her parents would like to take Alexa on one last adventure, a cruise, as long as she is still functioning rather well. It would mean a lot to the entire family. Alexa would be able to take along her sister and brother on this cruise as well, which would do them all a lot of good. We need a little help from you, however. Please do all you can. Click on the link below and that is all we ask. No donation, just a vote. This is not a phony gimmick or some marketing ploy, but a real request to help a real girl and her family, and it won’t cost you anything. Just a vote.

http://cruise.caregiverstress.com/view-vote-for-entries/?k=Kimberly+Savage

Please vote once a day till August 24.

My daughter, Kimberly Savage, has been caring for her 9 yr old daughter with Celebral Palsy (who doesn’t walk or talk) for 9 years. In addition she is now working 40-60 hrs a week at a full time job since her husband, Jason, was layed off in January 2013.

Alexa requires 24 hr assistance as she can not do anything for herself. My daughter, works like Superwoman to accomplish everything she does everyday. She’s an incredible human being. Her stress level is beyond the stroke level and she so very very much deserves this time away.

In addition she has two other school age children ages 6 and 11. She is constantly helping others with special needs to get things to help them. She is a huge advocant for others. She goes way out of her way to help so many children and adults, I’d love to think someone could help her. God bless you and your caregiver award committee.