10-month old sentenced to death by Court of Human Rights
I am not exaggerating or being hyperbolic with that headline. Charlie Gard is a ten-month old with a rare genetic disorder and brain damage. His parents wanted to take him to the United Sates for a therapy trial. But doctors at the British hospital took issue with that decision, because they thought it would unnecessarily prolong Charlie’s suffering. So they took Charles’ parents to court and — even though the parents had raised over $1 million pounds for the trip — both courts in the parent’s native U.K. and the European Court of Human Rights ruled that the hospital was within its rights to overrule the parent’s decision and end life support for little Charlie instead of allowing his parents to use money they raised to go to the US to take one last shot at saving his life. I’d like to know whose human rights this court thinks they are upholding? Remember little Charlie the next time someone tries to tell you that government-managed health care is compassionate, or that the US should be more like Europe. Read more on this case here. And make sure you read Campaign for Liberty Chairman Ron Paul’s column on how free-market health care is the most compassionate system.
Source: http://www.campaignforliberty.org/10-month-old-sentenced-death-court-human-rights
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While I think it’s bullshit a court would try to stop the parents from exploring all options, and I would tell the court to go fuck themselves and try to take my kid anyways, researching the disease shows that coming to America would do very little.
His form is the most severe form, affecting the brain, muscles, and organs. The survival rate past infancy for that kind is none. The ones with less severe forms, rarely make it to teenage years, and live miserable lives full of pain, surgeries, and constant experimental medications with unknown side effects.
Crappy situation all around, but you would have to ask yourself, am I being selfish trying to prolong his life? If you could catch the disease and did, and knew there was no cure, only experimental medications and surgery options that may or may not help, and in the mean time your brain functions, muscles, and organs were all going to slowly deteriorate until you did a few years later, would you want to leave your family that way, with those bills? Or just accept fate?